Hospice and te Palliative Care Movement

 The Art of Dying How to Leave this World with Dignity and Grace, at Peace with Yourself and Your Loved OnesThe Art of Dying: How to Leave this World with Dignity and Grace, at Peace with Yourself and Your Loved Ones by Patricia Weenolsen (2010) This book touches on a variety of end-of-life concerns from the practical to the spiritual to help the dying make the most of the remainder of their lives and find meaning in death. [NHCPL]

 Being with Dying Cultivating Compassion and Fearlessness in the Presence of Death

Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death by Joan Halifax (2008) The author founded the “Project on Being with Dying” which helps dying people face death with courage and trains professional and family caregivers in compassionate and ethical end of life care. [NHCPL]

 Changing the Way We Die Compassionate End-of-Life Care and the Hospice Movement

*** Changing the Way We Die: Compassionate End-of-Life Care and the Hospice Movement by Fran Smith and Sheila Himmel (2013) Journalists Fran Smith and Sheila Himmel take a broad, penetrating look at the hospice landscape through gripping stories of real patients, families, and doctors, as well as the corporate giants that increasingly own the market.

 Compassion in Dying Stories of Dignity and Choice

Compassion in Dying: Stories of Dignity and Choice ed. by Barbara Coombs Lee (2003) The author is the president of Compassion in Dying, a nonprofit organization that provides legal activism, public education, and client services to expand and protect the rights of the terminally ill.

Death without Denial, Grief Without Apology A Guide for Facing Death and Loss

 

Death without Denial, Grief Without Apology: A Guide for Facing Death and Loss by Barbara K. Roberts (2002) Roberts gives you a good idea of what to expect from hospice and the experience of having your loved one die at home through hospice. [NHCPL]

 Fragments on the Deathwatch

Fragments on the Deathwatch by Louise Harmon (1999) During the deathwatch for her father, Harmon, a lawyer, grew upset at the inhumanity of the medical and legal professionals toward the patient’s loved ones. This is a first person exploration of medical and legal issues our culture needs to begin dealing with.

Healing Touch True Stories of Life, Death, and Hospice 

Healing Touch: True Stories of Life, Death, and Hospice (2008) Pulitzer Prize-winning writer Richard Russo and five other Maine authors prove that the close of life need not be filled with darkness when hospice help is at hand. [NHCPL]

 A Hospice Guide Book

A Hospice Guide Book by Dr. Curtis E. Smith, Ph.D., Psy., D. (2012) This book provides a concise and valuable overview of hospice, its benefits, and end of life issues. For patients, caregivers and medical professionals.

 Hospice Voices Lessons for Living at the End of Life

Hospice Voices: Lessons for Living at the End of Life by Eric Linder (2013) The author has been a hospice volunteer since 2009. He reveals the thoughts, fears, and lessons of those living the end of their lives in the care of others. This one is a great read. [NHCPL]

 The Last Adventure of Life Sacred Resources for Living and Dying from a Hospice Councilor

The Last Adventure of Life: Sacred Resources for Living and Dying from a Hospice Councilor by Maria Dancing Heart (2008) Full of poems, prayers and meditations as well as excellent and exhaustive resources and a bibliography section. [NHCPL]

Lessons for the Living Stories of Forgiveness, Gratitude, and Courage at the End of Life

Lessons for the Living: Stories of Forgiveness, Gratitude, and Courage at the End of Life by Stan Goldberg (2009) The author, a cancer survivor himself, signed up as a hospice volunteer to spend time at the bedsides of the terminally ill. Here he shares stories of the people he met. [NHCPL]

 Living at the End of Life A Hospice Nurse Addresses the Most Common Questions

Living at the End of Life: A Hospice Nurse Addresses the Most Common Questions by Karen Whitley Bell (2010) A comprehensive guide that is well organized covers the scope of issues around hospice care with stories, resources, and practical suggestions on dealing with the day-to day aspects of dying. [NHCPL]

 The Modern Art of Dying A History of Euthanasia in the United States

The Modern Art of Dying: A History of Euthanasia in the United States by Shai J. Lavi (2005) In attempting to gain control over death, the author maintains we may unintentionally have ceded control to policy makers and bio-scientific enterprises.

 The Needs of the Dying A Guide for Bringing Hope, Comfort, and Love to Life’s Final Chapter

The Needs of the Dying: A Guide for Bringing Hope, Comfort, and Love to Life’s Final Chapter by David Kessler (2007) Kessler was co-author on two of Kubler-Ross’s later books and here continues her legacy with a gentle and compassionate work that provides a vocabulary for family members and the dying to communicate.

Peaceful Dying The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life

 

Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life. by Daniel R. Tobin, M.D. (1999) Based on the FairCare program used in many hospitals. [NHCPL]

 

*** Books I personally think are exceptional either in content or readability or both. Worth buying.

 This bibliography was prepared by Rebecca Taylor, Funeral Consumers Alliance – Costal Carolina. Notation of “NHCPL” means the New Hanover County Public Library.

Please check your local public library, or request titles by Interlibrary Loan. Virtually all titles are also available from online bookstores, like amazon.com, often in “used” and other inexpensive editions.,

Questions or for more copies contact:
Rebecca Taylor, President
Funeral Consumers Alliance Coastal Carolina
P.O. Box 4262
Wilmington, NC 28406
Email: BecTreks@aol.com